Adult CF Registry.

Cystic Fibrosis (CF) is a progressive, life-limiting genetic systemic disorder with increasing survival rates leading to a growing adult CF population worldwide. Despite advancements in CF management, there is a lack of systematic, prospective data collection for adults with CF in Saudi Arabia. The aim of this project is to establish a prospective, longitudinal Adult CF Registry at King Faisal Specialist Hospital & Research Centre (KFSH&RC) to collect comprehensive demographic, clinical, genetic, and outcomes data specific to adult patients.

Faisal Albaiz, Noura Alturaif.