Pediatric Palliative Care Program
Children with complex, life-limiting or life-threatening conditions represent a heterogeneous population characterized by a variety of disease trajectories. These children often have complex care needs. Along the way, family members regularly go through an array of strong emotions and have to take multiple complex and difficult decisions regarding care. Pediatric palliative care is a field that specializes in addressing these challenging, complex, and emotionally-charged situations of care.
Types of conditions for which a pediatric palliative care approach can be of benefit:
The Pediatric Palliative Care team ensures the provision of holistic care which takes into consideration the physical, psychological, social, and spiritual aspects of every experience. The team also gives equal attention to providing support to the child’s family. The involvement of a specialized Pediatric Palliative Care team should optimally begin as early as possible when a potentially life-limiting condition is diagnosed, even if remission in the future may be foreseeable (e.g. leukemia). A Pediatric Palliative Care team provides support and expertise to children regardless of whether or not they are receiving treatments directed at the disease (e.g. chemotherapy, bone marrow transplant). One of the key aspects of their work is to ensure a continuity of care along the whole disease trajectory: from inpatient to outpatient settings, from pediatric to adult care, from curative to palliative care goals.
The logo chosen by the Pediatric Palliative Care team is a colorful butterfly. It symbolizes the multiple transitions children and families go through along the disease trajectory. The logo was designed by one of the patients who followed at King Fahd Children Cancer Center.
Click here to see our Pediatric Palliative Care Services Leaflet.
Goals of Palliative Care Services:
The involvement of a Pediatric Palliative Care team also aims to reduce avoidable clinic and emergency department visits while addressing children and families' need with flexible outpatient options (e.g. phone clinic, virtual clinic, home visits).
Modalities of Service:
Days and Hours of Operation:
The team usually operates according to the Hospital usual working hours:
Sunday to Wednesday (0730-17:00H)
The team is composed of specialized nurses and a physician. It works in close collaboration with a play therapist, psychiatrist, social worker, and patient relation representative. Charity organizations and volunteers from the hospital are also a source of support to some of the team activities.
Areas of Research and Publications:
Staff Education Opportunities: